Support groups can be an important source of information and camaraderie for those of us with Essential Tremor. There are different ways of finding support with pros and cons to both physical and online support groups.
Read the full blog post at: http://tremoraction.org/2014/08/support-good/
f you have arrived at the point in your medical life where it is time to change neurologist, it can seem like an overwhelming process. It really do not have to be. From my experience it is neither daunting nor intimidating and can be the best thing you do for your health.
When I recently had my first appointment with my new movement disorder doctor, it was not simply a matter of showing up on time for the appointment. It was a process that began with first deciding I needed a new doctor. While I am speaking specifically about visiting a movement disorder specialist in this blog post, many of these ideas can be applied to preparing for any doctor visit. The following steps can ensure success transition and communication with your new physician.
Read the full blog post at: http://tremoraction.org/2014/07/success-details/
Switching your neurologist, or any doctor for that matter, can be a daunting experience. Changing from a local neurologist to a nationally recognized one at a hospital with an international reputation is even more intimidating. Very few people are willing to make that type of change unless their current neurologist retires, moves or fails them in an epic way. From my experience it is neither daunting nor intimidating and can be the best thing you do for your health.
Read the full blog post at: http://tremoraction.org/2014/07/finding-hope-without-gps/
The Internet can be a blessing and a curse to those of us with medical issues. Support is crucial in surviving with chronic disease but playing doctor can be deadly.Play Doctor Take for example my own ongoing battle of Essential Tremor Symptoms. It’s like a game show, “Wheel of Symptoms.” Pick a symptom, describe it in detail and try to figure out if it is related to Essential Tremor or another condition/illness altogether.
Read full blog at: http://tremoraction.org/2014/06/playing-doctor/
"There is no cure for Essential Tremor. None. At least not yet. If there is to ever be a cure, there first has to be a solution to The Problem with Essential Tremor. The Problem with Essential Tremor is awareness (or lack thereof). Very few people know what Essential Tremor is. The term “movement disorder” is often assumed to mean Parkinson’s Disease. Essential Tremor not only does not have a place at the table of movement disorders, it is not even part of the dinner conversation."
See full text of blog at: http://tremoraction.org/2014/05/hanging-together/
Posted May 30th, 2014 by TAN
There is no “fun” in essential tremor. Literally and figuratively. You cannot spell “fun” using the letters in essential tremor, and it certainly is not a barrel of laughs to cope with it. However, it is no reason you cannot inject your own fun into your life with essential tremor. It is simply a matter of not allowing essential tremor to steal everything you enjoyed before your symptoms appeared.
Read the full post at: http://tremoraction.org/2014/05/taking-back-et-leisure-activity/
When those of us with medical issues think of advocacy, we tend to think of the “big boys”: Michael J. Fox and Parkinson’s, Susan Komen and Breast Cancer. Reminiscent of the belief that our individual voices are not heard in politics unless we belong to one of the two mainstream parties, we buy into the thought that we must have an organization to advocate for us. While organizations can be helpful in advocating, they are by no means necessary. All you need to advocate is your personal experience and the desire to make your voice heard.
Read the full post at: http://tremoraction.org/2014/05/advocacy-can-effective-individual-level/
“Loretta Ellis Geddes, born in 1886, lived in Panama while her husband Thomas worked on building the canal. She raised seven children between Panama and New York City during the depression. She spent every day taking care of her husband, children, and grandchildren. What Loretta never did was eat dinner with her family, have refreshments at her daughter’s engagement tea, eat or drink anything at any of her children’s or grandchildren’s weddings. She had essential tremor. She had it from the time she was a teenager. No one knew what it was or what caused it."
Read the full post at: http://tremoraction.org/2014/05/advocate-1/